LAF Community Network, Greater Orlando, Florida
Contact: Fran Davila-Aponte at (407) 862-8642 or loud1@earthlink.net
Meeting Location and Time
The Daytime Lymphedema Support Group
Central Branch Library
215 N. Oxford RoadRoom 2
Casselberry, FL 32707
Third Wednesday February through November
We welcome lymphedema patients, people at risk for lymphedema, spouses, caregivers and health care professionals. Lymphedema information packets
and handout are given to attendees.
Topics of previous meetings:
MarchSelf Massage
AprilLymphedema Scams
MayCool Tips for a Hot Summer
JulyCompression Garments for the Treatment of Lymphedema
AugustAdvocacy
SeptemberOverview of the National Lymphedema Conference in Chicago and Hydrotherapy Exercises by Dr. Casley-Smith
LAF Community Network, Orange Park, Florida
(includes Jacksonville and St. Augustine)
Contact: Candace Bridgewater (904) 269-9113 or email cbridgewater@elymphnotes.org
Meeting Location and Time
Orange Park Cancer Center
2161 Kingsley Avenue, Orange Park
Fourth Monday January through October
One of the best assets of this group is the frequent attendance of students from a
physician's assistant school. Nursing students from
local universities are invited.
Topics of previous meetings:
January 2002 Cancer Surgeries and the Development of Lymphedema by John
Brinkman, MD, General & Laparoscopic Surgeon
February 2002 Noli Dioneda, PT and Lymphedema Therapist, Mayo Clinic, Jacksonville
March 2002 Exercise, Fitness, and Lymphedema by Ronnie Acuna, PT, LE Therapist
April 2002 Lymphedema Treatment Options by Carolyn Alexander of Peninsular Medical
May 2002 Coping with Long-term Health Problems by Thomas DiLoreto, Ph.D., LCSW DCSW
June 2002 Bandaging Talk and Demonstration by Sandra Stover, LMT, LE Therapist and Ronnie Acuna, PT, LE Therapist
July 2002 Skin Care and How to Avoid Infections by JoAnne Ross, LMT, LE Therapist
August 2002 Review of Research and Potential New Techniques in the Treatment of LE
September 2002Report on National Lymphedema Network's International Conference and Review of Legislative Issues regarding Lymphedema
October 2002 - Introduction of upcoming Lymphedema Event in Orange Park, February 27-28, 2003
LAF Community Network, Ohio & Kentucky
Contact: Mary Defoe at mdefoe@elymphnotes.org
or 859 441 6484 or Breast Health Nurse 859-344-2273
Location and Time
The Lymph Connection (TLC)
St. Elizabeth Medical Center South
One Medical Village Drive
Edgewood, KY 41017
(Greater Cincinnati)
Third Monday of each month Sept-May
Topics of previous meetings:
May 2001 Chikly Lymph Drainage Therapy by therapist Laura Lander
July 2001 Life with LymphedemaTurning Don't Dos into Can Dos, practical suggestions on living with lymphedema.
Sept 2001 Correct Compression Techniques by Liz Wood, RN, and certified fitter
Oct 2001 Love Your Lymph: Nutritionally Speaking by Dr. Cathy Gratkowski, DC and Nutritionist
January 2002 Emotional Aspects of a Chronic Illness by Barbara Henry, Psychotherapist
February 2002 Compression Garments by Beth Stein, compression expert for burns, wounds and lymphedema
April 2002 Dressing Made Easy by Suzanne Martin, co-owner of a clothing store for people with disabilities
May 2002 Bandagings' Ins and Outs by Marina Branch, PT, Klose Norton-trained lymphedema massage therapist
Sept 2002 Reflexology: Using Pressure Points to Stimulate the Lymphatic System, by Kathy Zanardelli, M Ed. and Wellness Counselor
LAF Community Network Central Florida
Contact Pam at 352 742-8282 or otwitch27@yahoo.com
Leesburg-Evening, (352) 742-8282, third Thursday
The Evening Support Group meets on the third Thursday at 6 pm at a temporary
location: Good Life Emporium Room in Lake Square Mall (meeting room is adjacent
to the Piccadilly Cafeteria). This group welcomes all patients, caregivers and
anyone interested in learning more about lymphedema. Recent topics:
Demonstration of Lymphedema Products, Nutrition, Aquatic Exercises-demonstrated
in the YMCA therapy pool, Yoga and Self-Massage. Other activities include
participation in the American Cancer Society's Relay for Life and the upcoming
hosting of Work Out for Lymphedema on October 25 at the Tavers, FL YMCA.
Volunteers are needed.
The Daytime Lymphedema Support Group usually meets on the second Thursday of the
month at 3:00 pm at 734 North Third Street-Suite 506, Leesburg, FL. Verify the
time and date by calling Physio Med's therapist, Scottie Bull (352 365-1114).
LAF Community Network, Jacksonville, Florida
Contact: Steve Parkerson
(904) 398-2829 or email jaxlymph@bellsouth.net
Jacksonville Lymphedema Clinic
1550-3 Hendricks Avenue
Jacksonville, Florida 32207
LAF Community Network Southwest, Florida
(Ft Myers and Naples areas)
Contact: Ellen Poage, RN, BSN, MPH, LMT
Email: Egpoage@aol.com
Bimonthly Support Group.
LAF Community Network Southwest Orlando, Florida
Contact: Francoise de Ganahl, RN, BS, LMT, RYT at 407-292-4445 or email: francoise@windermerewellness.com
LAF Community Network Southwest Missouri
Contact: Debbie Rahmoeller at email: drahmoeller@elymphnotes.org
