|  | Home > Procedures and Benefits for Establishing a LAF Community Network
Procedures and Benefits for Establishing a LAF Community Network
The LAF's goal is to provide support and resources where people live. Many lymphatic professionals and patients are frustrated at the lack of medical awareness and resources for Lymphedema, especially at a local level. Historically it was common to hear patients driving over two hours or more to treatment centers, and only getting access to help after many years of having Lymphedema. Every therapist and patient deserves the right to have access to Lymphedema information, education, support and a network to resources where they live.
To establish local assistance, we welcome dedicated and sincere activists to join our LAF Community Network team. Those who have a proven desire to promote awareness and support in their communities, are eligible to come on board, either as a support group leader or a representative.
Benefits of being an LAF Community Network
We are a wide spread group of dedicated lymphedema patients and lymphatic therapists who are loyal to the awareness and support cause. We are determined to take small bites off the ‘ignorance mountain’ that surrounds lymphedema - starting with where we live. Collectively, we are willing to share our talents and skills in writing, marketing, lymphatic education, photography, graphic design, languages, typesetting - our spare time and experience! Many of our team have been with the LAF for over four years. For more detailed information on the
LAF, visit About Us.
a. Your group information and news will be posted on eLymphNotes.
b. Coming in the fall/winter 2004/5, a one-page website dedicated to your community network will be available where you can make updates easily
c. Marketing support for planning educational awareness events and seminars, etc
d. Limited use of the email broadcast system to send out invitations and alerts.
e. Access to the growing lymphedema library of books, videos and article reprints.
f. Printed educational materials and awareness tools
g. Coming in 2005, access to the online database of your local area for easy access data maintenance.
i. Limited use of the main database for mailings.
What we need from our Community Network leaders:
a. Establish a local point-of-contact for lymphedema resources and support. Dedicate themselves for at least two years.
b. Gather local information and build/maintain a local database using the template provided. For example, listing local treatment centers/therapists, the media, physicians who know about LE and those who need information, local vendors, related support groups and local politicians, etc.
c. When established, we will need your support to help fundraise or gather sponsorships to cover the cost of establishing a local support group, event or seminars. Funds raised also go to cover the cost of LAF printed educational materials, keeping the eLymphNotes website live/maintained, administration and the LAF patient fund.
d. Assist with at least one other LAF program, for example, translating, proofreading, event support or sharing your skills when needed.
e. Collect donated lymphatic treatment, products and supplies for the LAF Patient Fund and help screen local patients in need.
f. Attend quarterly online meetings to discuss issues and share resources.
If you are interested in joining the team contact laf@elymphnotes.org
|
| |
| |
|
