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What is Lymphedema?
an abnormal swelling
of the body...Read On


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Home  >  Permanent Content  >  Awareness Effort and Accomplishments of LAF Community Networks

Awareness Effort and Accomplishments of LAF Community Networks

Local people turning their frustrations to make a difference where they live...

March 20, 2004
Team Lymph - 0 - Maniacs at the Dragon Boat Race, Tavares, FL. Coordinated by the Team Captain, Pam Smith, Lymphatic Therapist in Tavares, FL. Central Florida LAF Community Network.

January 8, 2004
An Evening of Lymphedema Education, was encouraged and supported with the help of Candace Bridgewater
by the Women’s Center of Jacksonville’s Bosom Buddies, Orange Park LAF Community Network and the Jacksonville Lymphedema Clinic.

Saturday, Oct 25, 2003
Work Out for Lymphedema Fundraiser in Tavares Florida, with the Mayor in attendance and coordinated by Pam Smith with much assistance of Pat Thompson

February 27 and 28, 2003
A night of educating Physicians, following with a full day of patient education and demonstrations, coordinated by Candace Bridgewater

April 2002
Annual Fun Walk in Orange Park FL. Team Captain Candace Bridgewater of the Orange Park LAF Community Network, build a Lymphedema Team and raised nearly $5,000.

September 2001
Party to celebrate the success of eLymphNotes, The First Online Magazine on Lymphedema, at the NLN conference in Chicago, FL

Saturday, Oct, 2002
Work Out for Lymphedema Fundraiser in Tavares Florida. Coordinated by Pam Smith with much assistance from Pat Thompson.


October 2001
Work Out for Lymphedema Fundraiser, coordinated by Josephine Carey, who loves to exercise. This informal and casual event with a focus on exercise, provided short MLD sessions. Local Lymphatic Therapists donated their time to provide the MLD demonstrations and lymphedema exercises were provided by Susan Stuckhoft-Allen. This marked the LAF's 4th Annual LE Awareness event was held in Sanford, Florida.


July 2000
3rd Annual Awareness Event was marked the launch of the eLymphNotes, The First Online Magazine on Lymphedema. Jeff Dorton, Candace Bridgewater and Josephine Carey worked feverishly to produce a complimentary publication, to provide education and information where people live.

September 2000
The party to celebrate to launch of the first issue of eLymphNotes, The First Online Magazine on Lymphedema at the NLN conference in Orlando, FL.

October, 1999
Lymphatic Therapist, Stephanie Munroe within only 4 months, coordinated Tampa Florida’s first seminar on Lymphedema! Stephanie built an extensive community database and connected many new patients to treatment and support. Beki Riley and Josephine Carey assisted with the planning.

March 6, 1999
2nd Annual Awareness Event was co-coordinated by Lymphatic Therapist, Kristi Secrest of the Orlando Regional Medical Center and Josephine Carey. This hugh event helped to continue the awareness and networking effort for the local lymphatic community. Nationally known presenters, such as Diane S. Nannery, author of Coping with lymphedema and Dr. Emily Iker, Lymphologist and patient from California were the keynote speakers.

January 24, 1998 – Marked the first local lymphedema event ever in the USA
The event was presented in Orlando, Florida famous Church Street Market and was coordinated by patient Josephine Carey and Lymphatic Therapist, Ginger Cox. Starting with a budget of $0 in March 1997 and the determination to spread awareness, this event attracted Internationally renowned keynote speaker, Dr. Kasselroller, Medical Director of the Dr. Vodder School in Austria and the sponsorship of the American Society of Lymphology.





Support Team Lymph - 0 - Maniacs at the Dragon Boat Race in Tavares, FL.. We are building a team of 22 people. 8 need to be men, to help raise funds for the advocacy and educational programs of the Lymphedema Awareness Foundation (LAF). To join Team Lymph - 0 - Maniacs -its $35 per person and you get a team visor, t-shirt, water bottle and refreshments and team tent rental. Also included are 4 practices, two weeks before race day and a minimum of 3 races on race day. Lymphedema educational materials will be circulated.. This is a public event and a great opportunity to make the general public aware of Lymphedema – come and cheer on the team! Each team member can invite their friends and family to sponsor them and cover their initial $35 cost. Bring in the Gold!Sponsor levels – Gold $1,000, Silver $500, and Bronze $200. Recognition and acknowledgments will be given on race day at the team tent. To Support the Team:By sending a donation online or mail to the 'LAF' and mail to: 172 Lakeside Circle, Sanford, FL 32773, USA or Volunteer on race day. For more information on Dragon Boat racing go to: www.floridadragonboats.com/DB_Overview.htm

January 8, 2004
A free program entitled ''An Evening of Lymphedema Education'' was presented January 8, 2004 by the Women’s Center of Jacksonville’s Bosom Buddies, The Lymphedema Awareness Foundation and the Jacksonville Lymphedema Clinic. Renee Romero, RN of Bandages Plus was the featured speaker and Frank Lambrechts of Juzo spoke and presented information on lymphedema garments. Thanks to Bobbi de Cordova-Hanks of Bosom Buddies and Steve Parkinson of the Jacksonville Lymphedema Clinic for developing this program.

The Orange Park Florida branch of the Lymphedema Awareness Foundation hosted double lymphedema seminars February 27 and 28, 2003.
The Thursday evening meeting for medical professionals, held at and sponsored by the Orange Park Medical Center, was standing room only for more than one hundred physicians, nurses, physical therapists, occupational therapists, licensed massage therapists, and lymphedema therapists. Each received two free continuing medical or education credits as they learned about the connection between wound care and lymphedema from John M. Macdonald, MD and Renee Romero, RN, CLT-LANA.

Presenters: Renee Romero and John McDonald, MD.
The participants were supplied with literature about lymphedema from the LAF and NLN as well as a list of local certified lymphedema therapists and support group information. Every effort was made to educate these essential health care members about lymphedema, its reality and its treatment.

The Friday meeting, for one hundred patients, those at-risk, and caregivers was held at the Orange Park Holiday Inn and was sponsored by the North Florida Affiliate of the Susan G. Komen Breast Cancer Foundation, the RITA Foundation, Inc. (a local organization focusing on breast cancer issues), the American Cancer Society, and eLymphNotes. The underwriting gold sponsor was Lohmann & Rauscher, Inc., and the silver sponsor was The Jacksonville Lymphedema Clinic. Candace Bridgewater presents a plague to Josephine Carey

Dr. Macdonald and Mrs. Romero even more thoroughly described the causes, progression, and treatment of lymphedema for those who attended Friday¹s session. Lymphedema products were displayed by a wide variety of vendors and treatment centers. A continental breakfast and buffet lunch was served, all at no cost, thanks to the sponsors.
The goal of these seminars was to educate medical professionals and patients about lymphedema, and we feel this was successfully achieved.
First Coast News TV station airs story on Lymphedema at an LE Clinic for the upcoming LAF Seminar, Jacksonville Florida.
Journalist Jeannie Blaylock, Candace Bridgewater, Preston Parkinson, Ann Jett and a crew of Lymphedema Therapists spoke with the media about Lymphedema.

2003 Annual LE Fund Drive - kick off event - Oct. 25 in Tavares FL
Join in on the fun, give what you can & enjoy...
· Lymphedema exercises
· Manual Lymph Drainage (MLD) sessions
· Product demonstrations
· Networking for Therapists & Patients
· Lymphedema T-shirts, Hand Outs & Giveaways
· Music, Raffles, & More!
FREE Admission & Refreshments!
Work Out for Lymphedema Fundraising Event for the Lymphedema Awareness Foundation (LAF).
DATE: Saturday, Oct. 25, 2003
TIME: 10am to 2pm
PLACE: YMCA / Waterman Florida Hospital
ADDRESS: 32029 David Walker Drive, Tavares, FL 32778
Therapists who donate MLD sessions will get a complimentary ad in eLymphNotes - a $60 value. Patients wear a compression garment if you have one.
RSVP by Oct. 20, 2003 or for details or to help volunteer, contact: Pam Smith, OTR/L MLDT, Program Coordinator Tel: 352-742-8282


2002 - Celebrating two years of eLymphNotes
LAF Hosted Pre-Conference Wine Party at the 5th National Lymphedema Network International Conference

LAF members Candace Bridgewater (eLymphNotes editor), Fran Davila-Aponte (daytime support group co-chair) and Mary Defoe (eLymphNotes assistant editor) welcomed twenty guests. Among them were Dr. Judith Casley-Smith of the Lymphoedema Association of Australia; personnel from Bandages Plus online lymphedema supplies ; members of Wendy Chaite's Lymphatic Research Foundation (LRF) ; Jeanne Tassis founder of the Lymphedema Circle of Hope Foundation and designer of the official lymphedema butterfly pin.

Judith Casley-Smith with eLN editor, Mary Defoe
Candace Bridgewater with Monica Keller Mary Defoe, Editor of eLymphNotes, listens to what people want from eLymphNotes.
Myr Odeda and Fran Davila-Aponte with guests


2001 Work Out for Lymphedema Fundraiser in Greater Orlando, Florida
The LAF's 4th Annual Lymphedema Awareness Event took on a different twist from usual presenter/exhibitor events in the past. This time with an informal focus on exercise, fun and MLD! Lymphatic Therapist Susan Stockhoff-Allen gave Lymphedema exercises, Joanne Ross, Ginger Cox and Scottie Bull generously donated CDP and MLD sessions. And there was more! Lissa Pare, a Taerobx Instructor, later gave a toning & stretching class plus all enjoyed Lymphedema T-shirts, refreshments and networking.
Thanks for your donations!

July 2000 - eLymphNotes, The First Online Magazine on Lymphedema
3rd Annual Awareness Event was marked the launch of the eLymphNotes. Jeff Dorton, Candace Bridgewater and Josephine Carey worked feverishly to produce a complimentary publication, to provide education and information where people live

Support Team Lymph - 0 - Maniacs at the Dragon Boat Race in Tavares, FL.
We are building a team of 22 people. 8 need to be men, to help raise funds for the advocacy and educational programs of the Lymphedema Awareness Foundation (LAF).

To join Team Lymph - 0 - Maniacs - its $35 per person and you get a team visor, t-shirt, water bottle and refreshments and team tent rental. Also included are 4 practices, two weeks before race day and a minimum of 3 races on race day. Lymphedema educational materials will be circulated.. This is a public event and a great opportunity to make the general public aware of Lymphedema – come and cheer on the team!

Each team member can invite their friends and family to sponsor them and cover their initial $35 cost.

Bring in the Gold!
Sponsor levels – Gold $1,000, Silver $500, and Bronze $200. Recognition and acknowledgments will be given on race day at the team tent.

To Support the Team:
By sending a donation online or mail to the 'LAF' and mail to: 172 Lakeside Circle, Sanford, FL 32773, USA or Volunteer on race day.

For more information on Dragon Boat racing go to: www.floridadragonboats.com/DB_Overview.htm




January 8, 2004
A free program entitled ''An Evening of Lymphedema Education'' was presented January 8, 2004 by the Women’s Center of Jacksonville’s Bosom Buddies, The Lymphedema Awareness Foundation and the Jacksonville Lymphedema Clinic. Renee Romero, RN of Bandages Plus was the featured speaker and Frank Lambrechts of Juzo spoke and presented information on lymphedema garments. Thanks to Bobbi de Cordova-Hanks of Bosom Buddies and Steve Parkinson of the Jacksonville Lymphedema Clinic for developing this program.


The Orange Park Florida branch of the Lymphedema Awareness Foundation hosted double lymphedema seminars February 27 and 28, 2003.

Presenters: Renee Romero and John McDonald, MD.

The Thursday evening meeting for medical professionals, held at and sponsored by the Orange Park Medical Center, was standing room only for more than one hundred physicians, nurses, physical therapists, occupational therapists, licensed massage therapists, and lymphedema therapists. Each received two free continuing medical or education credits as they learned about the connection between wound care and lymphedema from John M. Macdonald, MD and Renee Romero, RN, CLT-LANA.

Presenters: Renee Romero and John McDonald, MD.
The participants were supplied with literature about lymphedema from the LAF and NLN as well as a list of local certified lymphedema therapists and support group information. Every effort was made to educate these essential health care members about lymphedema, its reality and its treatment.

Candace Bridgewater presents a plague to Josephine Carey

The Friday meeting, for one hundred patients, those at-risk, and caregivers was held at the Orange Park Holiday Inn and was sponsored by the North Florida Affiliate of the Susan G. Komen Breast Cancer Foundation, the RITA Foundation, Inc. (a local organization focusing on breast cancer issues), the American Cancer Society, and eLymphNotes. The underwriting gold sponsor was Lohmann & Rauscher, Inc., and the silver sponsor was The Jacksonville Lymphedema Clinic. Dr. Macdonald and Mrs. Romero even more thoroughly described the causes, progression, and treatment of lymphedema for those who attended Friday¹s session. Lymphedema products were displayed by a wide variety of vendors and treatment centers. A continental breakfast and buffet lunch was served, all at no cost, thanks to the sponsors. The goal of these seminars was to educate medical professionals and patients about lymphedema, and we feel this was successfully achieved.



First Coast News TV station airs story on Lymphedema at an LE Clinic for the upcoming LAF Seminar, Jacksonville Florida.

Journalist Jeannie Blaylock, Candace Bridgewater, Preston Parkinson, Ann Jett and a crew of Lymphedema Therapists spoke with the media about Lymphedema.













2003 Annual LE Fund Drive - kick off event - Oct. 25 in Tavares FL

Join in on the fun, give what you can & enjoy... Lymphedema exercises
• Manual Lymph Drainage (MLD) sessions
• Product demonstrations
• Networking for Therapists & Patients
• Lymphedema T-shirts, Hand Outs & Giveaways
• Music, Raffles, & More!

FREE Admission & Refreshments!
Work Out for Lymphedema Fundraising Event for the Lymphedema Awareness Foundation (LAF).
DATE: Saturday, Oct. 25, 2003
TIME: 10am to 2pm
PLACE: YMCA / Waterman Florida Hospital
ADDRESS: 32029 David Walker Drive, Tavares, FL 32778
Therapists who donate MLD sessions will get a complimentary ad in eLymphNotes - a $60 value. Patients wear a compression garment if you have one. RSVP by Oct. 20, 2003 or for details or to help volunteer, contact: Pam Smith, OTR/L MLDT, Program Coordinator Tel: 352-742-8282


2002 - Celebrating two years of eLymphNotes
LAF Hosted Pre-Conference Wine Party at the 5th National Lymphedema Network International Conference

LAF members Candace Bridgewater (eLymphNotes editor), Fran Davila-Aponte (daytime support group co-chair) and Mary Defoe (eLymphNotes assistant editor) welcomed twenty guests. Among them were Dr. Judith Casley-Smith of the Lymphoedema Association of Australia; personnel from Bandages Plus online lymphedema supplies ; members of Wendy Chaite's Lymphatic Research Foundation (LRF) ; Jeanne Tassis founder of the Lymphedema Circle of Hope Foundation and designer of the official lymphedema butterfly pin.

Judith Casley-Smith with eLN editor, Mary Defoe Candace Bridgewater with Monica Keller Mary Defoe, Editor of eLymphNotes, listens to what people want from eLymphNotes. Myr Odeda and Fran Davila-Aponte with guests

Judith Casley-Smith with eLN editor, Mary Defoe

Myr Odeda and Fran Davila-Aponte with guests
Mary Defoe, Editor of eLymphNotes, listens to what people want from eLymphNotes.
Candace Bridgewater with Monica Keller




2001 Work Out for Lymphedema Fundraiser in Greater Orlando, Florida
The LAF's 4th Annual Lymphedema Awareness Event took on a different twist from usual presenter/exhibitor events in the past. This time with an informal focus on exercise, fun and MLD! Lymphatic Therapist Susan Stockhoff-Allen gave Lymphedema exercises, Joanne Ross, Ginger Cox and Scottie Bull generously donated CDP and MLD sessions. And there was more! Lissa Pare, a Taerobx Instructor, later gave a toning & stretching class plus all enjoyed Lymphedema T-shirts, refreshments and networking.

Thanks for your donations!




July 2000 - eLymphNotes, The First Online Magazine on Lymphedema
3rd Annual Awareness Event was marked the launch of the eLymphNotes. Jeff Dorton, Candace Bridgewater and Josephine Carey worked feverishly to produce a complimentary publication, to provide education and information where people live





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